Wednesday, November 25, 2009

Allie relapsed

For those that don't know, Allie has FSGS as a result of Nephrotic Syndrome, a chronic kidney disease. Due to lots of medicine, her kidneys are functioning as good as they are going to get, so we are trying to keep them that way. Well, a couple of weeks ago, she relapsed and we had to go into the hospital (an hour away) for 3 days of iv pulse steroid treatment. The dr increased some of her meds (including the prednisone, the drug I love to hate...keeps her on track, but changes her personality). In any case, I started knitting a cabled scarf and it was admired by her nurse.

I decided to send it to her because she took such good care of us. We had the same nurse the entire time we were there (except for 2 nights). I know I haven't posted pictures in a while, I will do that soon, I promise :)

No other news to report other than my mom has a tumor in her lymph nodes. We are awaiting test results, and she has to go for an inpatient cat scan. I pray it's nothing and benign. We are going through so many emotions during this trying time.

My stepmom also is having health issues. She was in the hospital with chest pains. Turns out it wasn't a heart attack, but they found out her arteries are really clogged, so she needs a vascular surgeon. She is a stroke waiting to happen, they said. So she is out of work (she works with little kids).

That is all, as if it isn't enough. Kids are doing good and we are waiting for our wonderful Thanksgiving feast. Thanksgiving is one of my favorite holidays that I look forward to all year long. So, Happy Thanksgiving!!

Tuesday, November 17, 2009

I know it's been a while, again

I have been so busy knitting up cabled scarves, they make great gifts. They are the Irish Hiking Scarves, just google and you'll see how beautiful they are.

I had Allie in the hospital last week for 3 days of IV pulse steroid therapy. She was relapsing and her levels were all off. For those that don't know, she has a non curable kidney disease, nephrotic syndrome with FSGS (focal segmental glomulerosclerosis). She will eventually need a transplant, but we are trying to keep her kidneys functioning for as long as possible. Right now, she is as good as she is going to get.

So, that's what we've been dealing with the past week. Busy busy busy.